Jace Alan Hall, Born 12/08/2012, Tetralogy of Fallot and Pulmonary
Atresia
Briston, Born 10-21-04, Truncus Arteriosis & DiGeorge Syndrome
Tyler Matthew Anderson, Born 01-11-07, TGA & COA & VSD
Logan Stone Schulz, Born 03-30-10, Tetralogy of Fallot & VSD
Charlotte Kowanetz, Born 09-29-10, Interrupted Aortic Arch, VSD and DiGeorge Syndrome
Austin James, Born 04-10-07, HLHS, Pulmonary Atresia & VSD
Audrina Soleil, Born 10-3-10, Truncus Arteriosus (type 1)HRHS, Tricuspid Atresia, ASD, VSD, Pulmonary stenosis, Pulmonary obstruction, Mitral regurgitation & Aortic regurgitation
Emy Mayes, Born 03-12-08, HLHS
Asher Sloan Griffin, Born 10-27-10, Tetralogy of Fallot with Pulmonary Atresia
Ashton Thomas Roessler, Born 03-09-10, Pulmonary Atresia with VSD
Kinley Tyler, Born 12-29-08, Left Ventricular Fibroma and VSD
Zoe Madison Lihn, Born 05-11-10, HLHS
Serena Lesley Cisneros, Born 08-25-09, Earned angel wings 03-15-10, Hypertrophy Cardiomyopathy
Emma Haeley G., Born 02-22-10, Tetralogy of Fallot
Gracie Renee Tice Mcnally, Born 03-30-10, ASD, VSD (alot of swiss cheese holes), Unbalanced ASVD, severe Tricuspid Valve Insufficiency & Pulmonary Stenosis
Jayden Chase Taylor, Born 01-21-10, HLHS
Sutton Kole, Born 04-12-10, Hypoplastic Aortic ArchDeaken Scot Wright, Born 03-17-10, Earned angel wings 04-12-10, Heterotaxy, AV canal deficit, total anomalous pulmonary venous return, dextrocardia w/ left SVC, & pulmonary atresia
Claire Capri Goode, Born 08-30-08, Shone's Complex
Brooklyn Anne McGough, Born 12-09-02, Shone's ComplexCoarctation of Aorta, Hypoplastic Aortic Arch, ASD, Multiple pinhole VSDs, fluid on brain, cystic hygroma, probable noonans syndrome and lung damage due to aspiration
Nathan Thomas Buck, Born 11-09-07, Hypoplastic Right Heart, Pulmonary Stenosis, VSD, single ventricle
Madalyn, Born 05-06-09, Double Outlet Right Ventricle, Large VSD, common AV valve, mitral atresia and hypoplastic aortic arch
Gabriella, Born 01-14-05, Restrictive Cardiomyopathy, Myocardial Bridging, PFO, Leaky Mitral Valve
Zoe Heyding, Born 12-28-10, Multiple VSDs and an ASD
Sophia Walsh, Born 05-03-09, Tetralogy of Fallot, Double Outlet Right Ventricle & Pulmonary Stenosis
William, Born 11-22-04, Pulmonary Atresia, major VSD and MAPCAs
Madelyn Angel Louise, Born 08-06-09, HLHS & TAPVR
Jace Rylan Cecil, Born 08-14-09, Tetralogy of Fallot with Pulmonary Atresia
Michelle has four kids, 3 of which have hereditary heart defects, including her husband. Her 14yr old son has a VSD, ASD, BAV, 2nd and 3rd degree progressive heartblock and pacemaker. Her 11yr old daughter has 2nd degree progressive heartblock, but no pacer yet. Her 3yr old has BAV and 1st degree progressive heartblock, but no pacer yet.
Lillian Grace, Born 01-18-08. Small ASD, 8mm VSD, PDA
Simon Lev Fitch-Jenett, Born 04-09-08, Idiopathic Dilated Cardiomyopathy
Aharon Marcus, Born 02-13-10, DILV, Dextrocardia, PS, TGA (congenitally corrected) and Right Hypoplastic Ventricle
Nevaeh, Born 09-17-06, Tetralogy of Fallot with Pulmonary Atresia, PFO, Right Aortic Arch and Pulmonary Arterial Hypertension
Jake Waddle, Born 10-13-05, TAPVR
Olive Jai, Born 05-05-09, Tetralogy of Fallot and Pulmonary Atresia
Mary Clare, Born 06-27-07, HLHS
Riley Nicole Brock, Born 12-30-08, Transposition of the Great Arteries
Reese Lara Griffith, Born 07-24-08, Williams Syndrome and Supravalvar PS
Cora, Born 11-30-09, Earned angel wings 12-06-09, undiagnosed CHD
Emily, Born 06-20-05, Mitral Valve Prolapse, Mitral/Aortic/Pulmonic Valve Regurgitation, PFO still open

Brayden O'Malley, Born 10-02-08, TGA, VSD, ASD and Pulmonary StenosisAfter Kaia passed, her Mom Stephanie lost her job. She is now making a living doing children's (and some adult) fabric art in honor of Kaia and CHD Awareness. http://littleliondesigns.etsy.com/

Stephen Eric Bowman, Born 10-15-09, Earned angel wings 11-27-09, Pulmonary Atresia, DORV and Large VSD
Matthew Lee, Born 12-16-02, Aortic Stenosis, Mitral Valve tissue blockage in front of Aortic Valve, Valve leakage and calcification of Aortic Valve
Rachael Faught, 27 years old, TGA and VSD
Ava, Born 05-23-06, DiGeorge Syndrome, VSD, ASD, LVOTO, Interrupted Aortic Arch and Pacemaker - Stroke Survivor
Maverick, Born 09-12-08, Earned angel wings 02-24-09, TGA (Taussig-Bing variant), VSD, ASD
Alyssa Roze, Born 11-13-09, Tetralogy of Fallot
Grace, Born 07-31-06, PDA, SV ASD, Secundum ASD and PAPVR
Her mommy Annamarie is a HUGE voice for CHD. Her website is http://1in100.org/
Maddie, Born 03-13-08, HRHS, Pulmonary Atresia w/IVS and Ebstein's Anomaly
Anika, Born 4-17-07, Single Ventricle, Dextrocardia, ASD, Pulmonary Valve Atresia, MAPCAs
Derrick Carter, Born 4-20-09, Single Ventricle, Dextrocardia, Pulmonary Atresia, Mitral Valve Stenosis, and Transposition of the Great Arteries
Tanner, Born 12-18-00, 2 VSDs, PDA, PFO and Club Foot
Lauren, 22yrs old, Tricuspid Atresia (aka HRHS/Single Ventricle)
Lilah Rae, Born 12-08-08, Tetralogy of Fallot with Pulmonary Atresia
Elijah "Eli" Schaffer, Born 12-06-05, L-TGA, PS, VSD, ASD, HRH
Sariah, Born 10-23-03, Mitral Valve Stenosis & artificial Mitral Valve
Abi Clayton, Born 12-13-02, Williams Syndrome-Supravalvular Aortic Stenosis, Mitral and Tricuspid Valve Insufficiency
Mackenzie, Born 02-19-09, Dilated Cardiomyopathy, Transplant 7-7-09
Sawyer "Zeb" Lyle, Born 03-02-07, Aortic Stenosis/Bicuspid Aortic Valve
Drew Brown, Born 05-30-08, Pulmonary Stenosis (Supravalvar and Valvar)
Alex Miller, 18 years old, Single Ventricle, TGA and Pulmonary Stenosis
Tristan Micah Johnson, Born 01-21-08, ASD ostium primum w/cleft mitral valve
Jet Thompson, Born 08-26-08, Coarctation of the Aorta
Adam Matthew Stoddard, Born 06-27-05, TGA, VSD, PFO & Pulmonary Stenosis
Landon James Hoekstra, Born 02-20-09, Coarctation of the Aorta, TGA, VSD, ASD
Abigail McKenzie Swindell, Born 04-28-08, Coarctation of the Aorta & VSD
Dylon Smith, Born 09-14-05, Circumflex Aorta & Vascular Ring
Joshua Adamson, 5 years old,
Trista Faith DeBruler, Born 02-27-09, Tetralogy of Fallot
Bentley, Born 08-20-08, Tetralogy of Fallot
Hamilton Jordan Hammons
Born 11-18-02, Earned angel wings 11-08-08, Dextracardia and Single Ventricle
Lenora Ahart, Born 10-02-03, Aortic Stenosis
Jack Fitzpatrick, Born 11-23-08, COA/PFO/VSD/ASD
Faith Janene, Born 04-14-07, Multiple VSDs & non-compaction of left ventricle
Corbin James Mellick, Born 06-06-08, Earned angel wings 07-27-08,
Jordan Snyder, 3 yrs old, AV transitional canal, cleft mitral valve, and currently subaortic stenosis

Ethin RaiLuc Twigg, Born 01-09-09
Anika, Born 4-17-07, Single Ventricle, Dextrocardia, ASD, Pulmonary Valve Atresia, MAPCAs
Tanner, Born 12-18-00, 2 VSDs, PDA, PFO and Club Foot
Lauren, 22yrs old, Tricuspid Atresia (aka HRHS/Single Ventricle)
Lilah Rae, Born 12-08-08, Tetralogy of Fallot with Pulmonary Atresia
Elijah "Eli" Schaffer, Born 12-06-05, L-TGA, PS, VSD, ASD, HRH
Sariah, Born 10-23-03, Mitral Valve Stenosis & artificial Mitral Valve
Lily, Born 07-15-07 and earned angel wings 08-21-08, HLHS, unbalanced translocation of chromosome 10 & 12, Dandy-Walker Syndrome, Mitrochondrial Disease
Abi Clayton, Born 12-13-02, Williams Syndrome-Supravalvular Aortic Stenosis, Mitral and Tricuspid Valve Insufficiency
Mackenzie, Born 02-19-09, Dilated Cardiomyopathy, Transplant 7-7-09
Sawyer "Zeb" Lyle, Born 03-02-07, Aortic Stenosis/Bicuspid Aortic Valve
Drew Brown, Born 05-30-08, Pulmonary Stenosis (Supravalvar and Valvar)
Tristan Micah Johnson, Born 01-21-08, ASD ostium primum w/cleft mitral valve
Jet Thompson, Born 08-26-08, Coarctation of the Aorta
Dylon Smith, Born 09-14-05, Circumflex Aorta & Vascular Ring
Joshua Adamson, 5 years old,
Tricuspid Atresia, Pulmonary Atresia, and Hypoplastic Right Ventricle
Bentley, Born 08-20-08, Tetralogy of Fallot
Hamilton Jordan HammonsBorn 11-18-02, Earned angel wings 11-08-08, Dextracardia and Single Ventricle
Logan Jacks, DORV, d-TGA, VSD, PS & Right Aortic Arch
Marcus Christopher Henry, Born 06-02-04, HLHS
Faith Janene, Born 04-14-07, Multiple VSDs & non-compaction of left ventricle
Transposition of the Great Arteries
Henry Bridges-Simpson, Born 12-05-08, TOF, Pulmonary Atresia & DiGeorge Syndrome
Memphis Wulfekahl, Born 06-13-07, Truncus Arteriosus
Phillip Smith, Born 11-15-06, Scimitar Syndrome
Jordan Snyder, 3 yrs old, AV transitional canal, cleft mitral valve, and currently subaortic stenosisEthin RaiLuc Twigg, Born 01-09-09
Earned angel wings 06-27-09
HLHS
To purchase $2 Remember Ethin Raise Awareness Spread Hope Bracelets
email Jessica Twigg at chdhlhs09@yahoo.com

Keegan L., Born 09-26-96, TGA

Keegan L., Born 09-26-96, TGAHis mom Ruth writes "His cardiologist claims that he now has the heart of an athlete, but we know as CHD mothers that there is always the possibility of that changing. I have raised Keegan in an unlimiting manner, not making his disability hinder him from trying any sport or physical activity that interests him. He is brave and strong, and truly a little fighter; thus the reason why I named him Keegan. He is well aware of his limitations and of his condition, but refuses to let it stop him from being a great and accomplished kid. May this give hope to those that have TGA babies, there is quality life after CHD."

















What beautiful, beautiful beautiful and amazing children :0) <3
ReplyDeleteThank you for adding our Lil Heart!! He is our miracle and we Thank God every day for him!!! Ur site is great!!! Big HUGS!!
ReplyDeleteRhonda ~
All of our heart kids are incredible gifts. Sometimes I look at Tanner on his dirtbike and think back to when he was just out of open heart surgery, so tiny, so critical...And my eyes fill with tears. I never would have allowed myself the wish of seeing him grow and enjoy life like he does!
ReplyDeleteSuzy
Tanners mom
Amazing as I come on newly discovered sights, and I see several of our heart friends. We are a family, brought together by beautiful, strong, and loved children.
ReplyDeleteKim, mom to Will, Unbalanced AV Canal (complete AV canal and Tetrology of Fallot) Down Syndrome
BT shunt, Bi-directional Glenn, Bi-ventricle repair
Thank you so much for having this website. As a recent parent of a CHD child it is wonderful to see the beautiful pictures and hear other's stories. It provides support to those families in need.
ReplyDelete- Alyssa's mom
To hear or follow Alyssa's story feel free to visit our blog.
Happymom4life.wordpress.com
i was shoocked to see PHACE syndrome mentioned on your blog! My daughter has it and it still seems so unknown to most drs so it was nice to see itmentioned here, thanks
ReplyDeletewyndi
www.allthingsizzy.blogspot.com
Great post ~ I'll be sure to send in my picture and see if I can't get some big CHD kids to send in theirs as well ~
ReplyDeleteThank you so much for posting my baby girl, Kaia. She helped raise awareness to thousands of people in her 34 day life. I'm so proud of all she did for awareness and all that she continues to do through me and the artwork she inspires.
ReplyDeleteStephanie
Hello Heart Parents.
ReplyDeleteMy Daughter Gabriella lives with EIF a type of CHD. My blog covers CHD Awareness.
http://aprilspregnancyblog.blogspot.com/
I terminated my chd baby who was diagnosed with double outlet right ventrical, hypoplastic left ventricle and mitral valve atresia with coarctation of the aorta. I am terribly upset and depressed that I chose to tx. I now know there was a great big possibility he would have made it after reading all these miraclous stories. What I chose to do in my extreme sadness, shock is something that is undescribable and unimaginable and this will stay and taunt me til the day I die. I am sorry my baby, im sorry I didnt give you a chance and didnt listen to my heart. I wish I could go back in time and give you the chance you deserved. I AM SO SORRY MY BABY, MY BABY M. MOMMY DOES LOVE YOU SO VERY MUCH AND IT KILLS ME TO KNOW THAT I CHOSE TO END YOUR LIVE. I HOPE YOU CAN FORGIVE ME BECAUSE I CANT FORGIVE MYSELF. SORRY I LOVE YOU SO MUCH AND WISH I CAN HOLD YOU AND WATCH YOU GROW. I AM SO SO SORRY NOTHING I SAY CAN BRING YOU BACK TO MY ARMS AND FOR THIS LIFE WILL BE HARD FOR ME TIL THE DAY I DIE. LOVE YOU SWEET BABY, LOVE YOU SO MUCH.
ReplyDeleteThanks for your pictures of these amazing strong children I am proud to say my child is a CHD survivor!
ReplyDeleteMy prayers are with the ones that have passed away<3
MY son has had MANY different challenges in his 15 years and today was just another eye opener! He was seen by an immunologist and she thinks he has digeorge syndrome and other syndromes on top of this! He does not have any heart complications- thank God! I just wanted to send out my love and support to ALL of you! And especially to the parents who lost their angels! My heart breaks for you! Also it breaks for the lady who HAD to make the worst decision she will ever have to make! You did what you felt you had to do! You did NOT know what life was going to be like for your angel! And hind sight is ALWAYS 20/20! So I am sending you out a particular stronger hug, and may the knowledge of people NOT blaming you for making the decision help your heart and soul heal! God Bless ALL of you!
ReplyDeleteMy son Jayden Chase Taylor was borning Jan 21, 2010 with HLHS and has had two to the series of three open heart surgerys. He had his first one at a week old and the second one at 2 1/2 month and he is such a miracle. Jayden will have his three sugery sometime next summer.
ReplyDeleteOur baby girl has been diagnosed with interrupted aortic arch, VSD, aortic stenosis, a pelvic kidney, and IUGR. DiGeorge syndrome is also suspected. It is so great to see all these pictures of sweet heart babies. I am excited and nervous to meet ours!
ReplyDeleteI was 3 months premature and had Patent Ductus Arteriosis (PDA) they were able to correct it with heart surgery and I am happy and healthy today thanks to many prayers on my behalf. I now am 29 (30 in december) and have 3 wonderful children!
ReplyDeleteMy prayers go out to all these sweet children and their families!
My daughter has HRHS, tricuspid atresia, large VSD(thats now closed and she has a shunt) and ASD. seeing these photos gives me so much hope for her. Iam a very young mommy, and when she was diagnosed at 20 weeks GA, i was terrified! here is my blog!
ReplyDeletehttp://brooklynnsmama922.blogspot.com/
<3
ReplyDeleteMy 14 year old son was diagnosed with Shone Syndrome in 1998, he has had 3 heart surgeries and will need more. Thank you everybody for sharing with everybody, makes me feel that I'm not alone,and that there is hope for my son.
ReplyDeleteThank you for your site and your tribute to CHD babies. I'm new to this "heart family" world, but am in need of support like this as our baby was born with a serious heart defect this year.
ReplyDeleteIt is amazing to see all these strong little kids. My baby is Gunner and he passed away December 28th of 2010. I miss him everyday and wish i could hold him.
ReplyDeleteThis just breaks my heart but knowing that My daughter isn't the only one makes me feel alot at ease. She had fetal growth restriction at about 20 weeks gestation. Had the toug pregnancy with placental abruption and placental previa. was monitored everyday for over 30 weeks. had a total gestation of 48 weeks. was born as I thought healthy. Had heart failure at 2 weeks due to congentional heart Disease. had a Patent ductus arteriosus then had to have corrective surgery.and Survived life without a father. She just turned 2 and I LOVE HER to pieces. Sunday-Ray born August 30, 2009
ReplyDeleteTo anonymous who chose to terminate your CHD baby with regret. My heart goes out to you. I know the doctors give you this option. Nothing can bring your baby back, but you must pray daily for strength to endure. Our God is a great God who forgives. You will be with your baby some day. Until then, fill your life with good things. Your baby will be in heaven waiting for you. God Bless you and make you strong.
ReplyDeleteI am so proud of these strong kiddos! It makes me smile every time i look at these pictures and see them smiling and happy and living life. They are amazing!I also have a daughter with a heart defect. and its just nice to know that these kids can live a normal healthy life. something that doctors always told me while i was pregnant my daughter would never be normal......what is normal anyways these days right!?
ReplyDeletehere is my blog http://jovannaandismaelzamora.blogspot.com/
i'm a pc nurse. great to see all these faces!
ReplyDeleteIm not alone... :) feel so happy to see the beautiful babies... i have a son who is almost 7 mths now with TGA, DORV, PDA, VSD & ASD... gone through 3 surgeries n doing great now after staying in hospital for 5mths + since birth...
ReplyDeleteMy wonderful amazing inspiration and my reason for living has tetraologie van fallot and chromosome deletion 15q11.2. We have been through hell and back as parents... but my little hero shows no sign of the last six months. We learn in November if he will require his second operation which will lead to a third (valve transplant). I wish my son did not have so many challenges but I know that it has made me a great mum who never takes a single of his breaths for granted. I kiss him a thousand times (I cant look at him without kissing him!!!)a days and thank him for letting me be his mother!!! It was reading blogs such as this that gave me hope that our little one would make it through. Here is to the most amazing children in the world!!!! You are a blessing, a gift... you make us better people!!! My advice... TRUST YOURSELF and BELIEVE AND TRUST in your child.
ReplyDeleteThis was such a great blog to come across. I was searching around because I am getting anxious about our daughters up and coming surgery. This will be her third one and hopefully the last one. She is Hyplastic Right Heart, and other issues but that is the main. She is a one ventrical baby..and a blessing to us. She is the first out of our 5 other children to have CHD. She is a great baby. Born 6/2/11! We are so happy she pulled through her open heart surgery at 6 days old, and her second at 6 months, and now in March will be her third one.
ReplyDeleteThese babies are all blessings..and God sent a gift and though it is hard to see our babies go through this, it makes us stronger, better parents, and a new perspective on life. God only gives us what we can handle... I wouldn't wish this upon anyone, but my baby is such a god send to us and means so much to us. She completes our family with her loudness, her funny little personality, and her busy little body.. lol now that she can run she runs everywhere.. :)
I will keep all these babies in my thoughts.